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Correspondence |

Assessment of Delayed Reporting of Mycosis Fungoides and Sézary Syndrome in the United States

Graça M. Dores, MD, MPH; Rochelle E. Curtis, MA; William F. Anderson, MD, MPH; Marie-France Demierre, MD
Arch Dermatol. 2008;144(3):413-414. doi:10.1001/archderm.144.3.413.
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Using data from the Surveillance, Epidemiology and End Results Program (SEER), Criscione and Weinstock1 described increasing incidence rates (IRs) for cutaneous T-cell lymphoma (CTCL) in the United States. The authors speculate that IRs may be underestimated owing to possible underregistration and delayed reporting. Underregistration or underreporting is difficult to assess; however, delayed reporting can be evaluated in SEER.2,3 Delayed reporting refers to cases submitted by SEER to the National Cancer Institute (NCI) after an allowable ascertainment period. Before submitting data to NCI, SEER registries have a 2-year period to collect information on all newly diagnosed cancer cases. Cases collected after this 2-year ascertainment period are reported on subsequent data submissions, thereby resulting in revised estimates of IRs for the earlier time period.2

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Incidence of mycosis fungoides and Sézary syndrome (MFSS) diagnosed in 9 cancer registry areas of the Surveillance, Epidemiology and End Results Program (SEER-9)5 by year of data submission (1996 or 2006). Temporal patterns are depicted for six 5-year calendar periods (1975-1979, 1980-1984, 1985-1989, 1990-1994, 1995-1999, and 2000-2004) overall (A) and by sex (B). All incidence rates are age adjusted to the 2000 US standard population.5

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