Author Affiliations: University of California, San Francisco School of Medicine, San Francisco (Ms Shive); Department of Health Policy and Management, Harvard School of Public Health, Boston, Massachusetts (Ms Shive); Harvard Business School, Boston (Mr Bhatt); Iteration Labs LLC, San Francisco (Mr Cantino); Department of Dermatology (Drs Kvedar and Jethwani), Harvard Medical School (Mr Bhatt), Boston; Center for Connected Health, Partners Healthcare, Boston (Drs Kvedar and Jethwani); and Department of Dermatology, Massachusetts General Hospital, Boston (Drs Kvedar and Jethwani).
Acne is one of the most common skin diseases, with an estimated prevalence of 50 million people in the United States alone, and has a significant impact on quality of life. The high prevalence and seriousness of acne makes crafting innovative avenues for patient education about this disease very important. Twitter has become a popular social networking phenomenon with a user base of over 140 million active users and 340 million tweets per day.1 Its popularity makes it a potentially powerful source of information and route of communication for acne, especially since the Internet can be an adolescent's primary sources of health information.2
Twitter is an online social networking service that allows users to post 140-character messages called “tweets” and to subsequently repost or “retweet” these messages from their own account. Using a form of real-time data capture through the use of the Twitter Streaming Application Programming Interface (API), we obtained an institutional review board–exempt status and collected all tweets that contained 1 or more of 5 keywords: pimple, pimples, zit, zits, and acne for a 2-week period from June 10 through June 23, 2012, with additional data monitoring in order to calculate a 1-week retweet count for each tweet. We applied an English filter that we determined had a 93% sensitivity and 97% specificity.3 These data were then exported as a comma-separated values (CSV) file via the TwitterToCSV software library that one of us (A.C.) developed for this research and that we have made available as an open-source package.4High-impact tweets, defined as tweets with one or more retweets, were the only tweets examined in this study. These high-impact tweets were frequency weighted by retweet count and categorized by content into 4 main categories: personal, celebrity, education, and irrelevant/excluded. The education category was further subdivided into: disease question, disease information, treatment question, treatment information (branded), treatment information (non-branded), and treatment information (ambiguous). The language and content of these high-impact tweets were then compared to the acne patient information website published by the American Academy of Dermatology (AAD).5
There were a total of 8192 English high-impact tweets of a total of 392 617 tweets collected. Personal tweets about acne were the most common type of high-impact tweets (43.1%), followed by tweets about celebrities (20.4%), and then education-related tweets (27.1%); 9.4% of tweets were excluded. By education subcategory, 16.9% and 8.9% of all high-impact tweets were about disease information and treatment information, respectively.
Results of a more detailed analysis of disease and treatment related tweets are summarized in Table. A total of 67.3% of disease question tweets related to some variant of “what is acne” or “why does acne exist.” Two-thirds of disease question tweets asserted in some way that stress causes pimples, and 9% of retweets commented that makeup causes pimples. The most common treatment question was “how do I get rid of my pimples?” There were a large variety of acne home remedies suggested, including topical food-based remedies ranging from eggs to herbs to fruit. A total of 3.3% recommended using over-the-counter products topically, including aloe vera gel, crushed aspirin (as a source of salicylic acid), and baking soda.
Word frequency comparisons between the AAD website (http://www.aad.org/) and Twitter showed a strong discrepancy in both the topics and level of language used to talk about acne. People on Twitter more often use the nonmedical terms of “pimple” or “pimples” in their discussions and referred more frequently to “toothpaste” and “Proactive” [sic] as treatments (Proactiv; Guthy-Renker LLC), while the AAD website used words like “skin,” “pore,” “cells,” “dermatologist,” and “treatment.” In addition, the AAD website did not address topics that are commonly discussed on Twitter, like makeup, stress, and the efficacy of diet, toothpaste, or other home remedies on acne.
Twitter is emerging as a popular forum where people exchange health information. Health providers can not only learn about the perceptions and misperceptions of diseases like acne, but they might also communicate reliable medical information. There is a significant amount of negative commentary about acne on Twitter, in addition to myths, incorrect information, and unconventional home remedies. The dermatology community should be aware of these popular beliefs to effectively address them and to deliver the best patient education and care possible, both online and in the clinic.
Correspondence: Dr Jethwani, Center for Connected Health, 25 New Chardon St, Boston, MA 02114 (email@example.com).
Accepted for Publication: November 29, 2012.
Author Contributions: Ms Shive, Mr Bhatt, and Dr Jethwani had full access to all of the data in the study and take responsibility for the integrity of the data and the accuracy of the data analysis. Study concept and design: Shive, Bhatt, Kvedar, and Jethwani. Acquisition of data: Shive, Bhatt, and Cantino. Analysis and interpretation of data: Shive, Bhatt, Cantino, and Jethwani. Drafting of the manuscript: Shive and Jethwani. Critical revision of the manuscript for important intellectual content: Shive, Bhatt, Cantino, Kvedar, and Jethwani. Statistical analysis: Shive, Cantino, and Jethwani. Administrative, technical, and material support: Cantino and Jethwani. Study supervision: Kvedar and Jethwani.
Conflict of Interest Disclosures: Dr Kvedar has served as consultant for and holds stock in Healthrageous.
Funding/Support: None reported.
Thank you for submitting a comment on this article. It will be reviewed by JAMA Dermatology editors. You will be notified when your comment has been published. Comments should not exceed 500 words of text and 10 references.
Do not submit personal medical questions or information that could identify a specific patient, questions about a particular case, or general inquiries to an author. Only content that has not been published, posted, or submitted elsewhere should be submitted. By submitting this Comment, you and any coauthors transfer copyright to the journal if your Comment is posted.
* = Required Field
Disclosure of Any Conflicts of Interest*
Indicate all relevant conflicts of interest of each author below, including all relevant financial interests, activities, and relationships within the past 3 years including, but not limited to, employment, affiliation, grants or funding, consultancies, honoraria or payment, speakers’ bureaus, stock ownership or options, expert testimony, royalties, donation of medical equipment, or patents planned, pending, or issued. If all authors have none, check "No potential conflicts or relevant financial interests" in the box below. Please also indicate any funding received in support of this work. The information will be posted with your response.
Some tools below are only available to our subscribers or users with an online account.
Download citation file:
Web of Science® Times Cited: 3
Customize your page view by dragging & repositioning the boxes below.
Enter your username and email address. We'll send you a link to reset your password.
Enter your username and email address. We'll send instructions on how to reset your password to the email address we have on record.
Athens and Shibboleth are access management services that provide single sign-on to protected resources. They replace the multiple user names and passwords necessary to access subscription-based content with a single user name and password that can be entered once per session. It operates independently of a user's location or IP address. If your institution uses Athens or Shibboleth authentication, please contact your site administrator to receive your user name and password.